Final PRIME research visits have started!

The countdown to the end of the PRIME RCT has started, with the final, 24-month research visits at the Remind Centre at Royal United Hospitals Bath now underway and continuing until May 2025. We’ll also be conducting some of the visits at participants’ homes, for those unable to make it to ReMind.

One of our PRIME participants undergoing a grip strength test as part of the 24-month testing at the ReMind Centre, RUH Bath

It’s a bittersweet time for the PRIME research team – both exciting in terms of gathering the final data that will enable us to answer our research questions, and sad to be leaving our wonderful participants who have selflessly given so much of their time and energy to the study.

For our active participants, the end of the trial means that they will return to their usual care, so our clinical team are busy conducting final reviews and preparing for handover.

It is difficult to express how enormously grateful we are to all of our participants, and how much we appreciate their dedication in completing some rather lengthy questionnaire booklets!

We look forward to seeing everyone over the coming months to wrap up their participation in the study.

A PRIME participant being measured for seated height.

The pictured participants kindly gave their consent for these photos to be shared.

Top Tip Tuesday – physical activity for all

Physical Acitvity Top Tips, Links and Resources!

Firstly, to understand how much exercise is recommended, and what this looks like, it may be helpful to read the NHS guidelines here:

To read more about exercising with Parkinson’s specifically have a look at these pages from Parkinson’s UK:

Videos and links which might be helpful

Parkinson’s UK Videos & Playlist on Exercise and Parkinson’s contains (at the time of writing) 53 videos to help get you exercising! The videos here range from low to high intensity. Some are seated, some require more movement, so have a look and find which ones are right for you!

Exercising at home with Parkinson’s

Chartered Society of Physiotherapy Get up and Go guide!

This is a leaflet designed to reduce the risks of falls, and contains lots of helpful tips plus a 6 exercise routine you can do at home to help improve your strength and balance

The Benefits of HIIT for Parkinson’s – Joe Wicks Interview with Milly Khan at Guys and St Thomas’ Hospital

20 Minute HIIT Workout for Parkinson’s – Joe Wicks Workouts

Strength and Balance Exercises

Again, this link to the NHS website is helpful to help you understand how much of this is recommended per week and what counts:

How to improve your strength and flexibility – NHS

Links and advice for wheelchair users:

NHS Fitness advice for wheelchair users

A person lifting hand weights while seated in a wheelchair

Parkinsons UK Seated pilates for posture:

Parkinson’s UK and Reach Your Peak chair based workout:

We hope these resources are helpful in your Parkinson’s journey.

PRIME hits 12-month milestone

The PRIME trial team recently reached another milestone, having completed all research visits for the 12-month (half-way) point of the trial. We’re really proud of all the hard work that the team have put in to these visits, both at the RICE Centre at RUH Bath (recently rebranded as the ReMind UK Centre) and at the homes of those unable to travel to the centre.

PRIME trial research team members Tom Gabriel (at back), (l-r) Kritika Jain, Nicola Giles, Anisha Cullen and Dani Pendry-Brazier (front)

We are also hugely grateful to all of our wonderful participants for their time and patience with the visits. We’re looking forward to seeing as many as possible of them again at the 24-month visits from November!

PRIME Parkinson RCT has recruited to target!

We are delighted to announce that the PRIME Parkinson RCT has completed recruitment, reaching the target of 214 people with Parkinsonism. This is a huge achievement and the PRIME RCT team are excited to continue the trial over the next two years!

We hope this trial will provide vital insight on proactive and integrated care for people with Parkinson’s.

Read more about the Prime Parkinson RCT.